Now that the goalposts have moved on the very positive side I am being admitted to hospital for a week from the 17th November. I have been fighting to try Ketamine infusions for years. In the other CRPS buddies I have and seeing other people talk on forums these days it seems that Ketamine infusions are used a lot earlier in the piece. This also boils down to of course having private health insurance too. For me this is my final option so I have a lot riding on this week in hospital to work.
My last appointment with my specialist a physio from the hospital as well sat in on the appointment . I had been telling her how out of control so many parts of my life feel now. My weight especially. I am very overweight to the point where I am worried about the other health problems carrying this much weight is causing. My knees go through stages where they are really swollen and really painful. Having CRPS all pain that you feel is completely blown out of proportion. I can drop something on my toe and still be complaining hours later. My left knee is currently very painful. Sharp pain and it gives out on me, just like it did when I was a teenager. I don’t remember doing anything to it but maybe I have damaged it. Carrying all of this weight puts a heap of pressure on my legs to carry me. The frustration of half a step forward and 4 steps back becomes more dangerous rather than a frustration when you a very overweight. So anyway this visit 2 months ago the doctor and the physio decided to have me admitted for a week for 3 days of Ketamine infusions and also try and fix other problems. I will be having physio each day, have my bowel issues looked at, visits with the psychologist and a psychiatrist and also get some kind of plan to help me lose weight. I have always found it really tough to lose weight dieting alone. For me I could be really good with my food but if I was not exercising I would stay the same weight. As much as I love the house I live in it is on the side of a really steep hill and I just can’t walk out of the front door and go for a bit of a walk and now I don’t drive. I feel like I have been thrown a lifeline and I want to make the very most of all of the help offered to me over the week.
So that’s my good news! Yay!
CRPS Shazz 