Maintenance

HydroIs it just me or do others having difficulties balancing all that you are supposed to do (or not do) with regards to having illness?

I try so hard to be a good patient, take the advice I am given, doing my hours of physio, happy time, exercise but all of the aspects of your life that you are trying to tweak, there is always something that goes by the wayside.

2 days after my birthday at the beginning of June I had a really severe flare again, as bad as Christmas time. Unable to barely move a muscle for the pain. Getting to the toilet was hard enough, changing my clothes and showering just didn’t happen for many of those days. My son of course offered to help me with my clothes but in actual fact I wouldn’t let him closer than 2 metres because the breeze his body made when he walked sent me into more spasms of pain. There was a few hours in this time that I was laying in bed just not moving 1 single muscle because any slight movement was more than I could take. Of course during this time everything stops and I guess this is the frustrating part when you arise from the ashes again, your fitness and weight loss is back to square one. I was feeling like I was achieving some wee little goals before then, lost 5 kgs and managed to get to Hydrotherapy twice a week and the body aches were feeling much better. I had weaned down my drugs to a daily dose of 5mg of Targin along with the Endep I take.

I guess my point is that I find it difficult on a daily basis to to address every aspect of my health everyday for one reason or another. Currently I have let my eating go. A bowl of cornflakes and dinner is just not the right dietry intake so therefore another part of your body complains (bitterly!) and leaves you another thing to try and fix. I guess my point is once you focus on one or two things to work on, there are just so many other things you have to work on at the same time. Diet, (when you never feel hungry), physio, exercise, happy time, meditation, mental thoughts, light housework. This illness makes it so difficult to keep all the balls in the air and I know each one of them is very important along with the “2 steps forward 19 steps back”

Don’t get me wrong, my headspace is in a much better place than 2 weeks and I am so very grateful that I am not feeling that much pain at present – perhaps it’s just the frustration that so many parts of your body are affected by illness and before this I really wouldn’t have been able to comprehend every facet of your life changing. I know my shrinky dink would tell me I am doing a good job doing what I can, when I can. Perhaps it is just my “Old Self” that compares what I could achieve before and the limitations I live with now.

Advertisements

Image

4 Comments (+add yours?)

  1. prayingforoneday
    Jun 28, 2013 @ 17:39:32

    YES!!!
    I am not alone..
    I can’t make a promise to Family or Friends as I can never tell if I will keep it.
    The simplest things, visiting my Mum with the girls (2 Daughters) I can’t say “Be there Sunday at 2pm) As I may be unable to walk.

    Annoying, but I just get my head down and if people can’t accept why, tough.

    Good blog!

    Reply

  2. wobblywife
    Jul 11, 2013 @ 01:18:57

    Oh yeah, I know that feeling Shaz! Don’t be disheartened, you’re doing amazing and think how it could’ve been worse if you hadn’t done all that hard work leading up to it. You don’t always see the steps forward because this dance that CRPS has us on swooshes out the footprints. Chin up lovely xxx

    Reply

    • shazzagirl70
      Jul 11, 2013 @ 21:20:14

      Thanks for your comments Kathy always appreciated and many thanks for the re-blog (I get very excited to be re-blogged!). Hopefully we can reach more people this way so we can all feel a little more normal together. Hope today is a relatively good one for you. Hugs your way xx

      Reply

  3. wobblywife
    Jul 11, 2013 @ 01:25:34

    Reblogged this on Rise Above Pain and commented:
    A really important issue for many people with chronic pain – two steps forward and a million back? Shaz writes so brilliantly and openly about her life with CRPS. I would highly recommend you follow her!

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

justpaintandplay

Journey of self discovery by Teresa Low Art

National Pain Report

What You Don't Know Can Hurt You

Kaisercraft Official Blog

Inspiring Craft Ideas

EJ Creative Flair

Alternative Jewellery with Heart & Soul

Lindy's Stamp Gang

Join the Lindy's color revolution!

Living Life Beyond Disability

A World Of Pain....Complex Regional Pain Syndrome

College on Crutches

Rambles of a college girl with RSD/CRPS...welcome to my world.

Gotta Find a Home

Conversations with Street People

Paulette's Blog

A Place of Worship: "Tugging at the Heartstrings of God"

Attack of the CRaPS

Complex Regional Pain Syndrome

CHRONIC

A Day in the Life....

Musings of a Dysautonomiac

Living life one pill organizer compartment at a time.

jenusingwordpress

Because love and affection is always better from strangers.

lady migraine 365

Trying hard to find my way with a headache nearly every day

In Loving Memory Of Jody Ann Bales

All about living life and dying from chronic pain

EDS and Chronic Pain News & Info

Research and articles related to Chronic Pain from Ehlers-Danlos Syndrome & Fibromyalgia

RSDiary

Just another cavalcade of random bitching... ***Updates SUNDAYS

%d bloggers like this: