About

IMG_0862

So how do you write a blog when you are newly disabled with it not being depressing or suicidal?

I decided a few days ago that I wanted to start a blog. Something that other people with CRPS/RSD could read and get “something” out of it, whether it was just a “Oh wow, that’s how I feel” or something inspirational to help through those days that just feel like utter poop!.

My name is Sharon and I am a 40′s something solo mum to a beautiful teenage boy son who is an amazing carer and just an awesome kid all over 🙂 I developed CRPS in September 2011 and diagnosed a year later after just such an insignificant roll with my dog in which I fell (not far) to the ground and saved myself with my left wrist. I now have CRPS in my left hand (dominant) wrist, hand and forearm. I live in Brisbane Australia… please read on…..

I spent hours setting up this blog to find that when it came to the crunch I had no idea what to write, that my feelings of being somewhat newly disabled were too raw, lonely and too personal and that the only people I would want to share that with would be people going through the same thing and NOT my family or friends. Now 3 years into having CRPS I still find this new life so very hard to deal with. I now have other issues to go along with the CRPS with other limbs not working all the time, bladder and bowel issues and I am struggling with my weight. I am waiting for 20+ hours of care, no longer shower, dress or drive and being a solo mum having to fill all of the roles and have for 13 years I am struggling with now no longer being able to be independent. When does this get easier – mentally really? I have always stuffed my feelings into an internal box until the box explodes. I try extremely hard not to “whinge” to my friends. Each day is a new day though and it’s just a matter of putting one foot in front of the other. Now being very housebound I am so very lucky that my hands allow me to make cards as a hobby and I do think this has really been a big saviour for me. When we talk about pacing our activities I have now made my craft time my priority over other tasks as I use fine motor skills (lose it or lose it) and finds some happiness in what I do as well. I have just recently started a blog showing my cards www.prettygirlystuf.blogspot.com

I used meditation daily and am really astounded how well this works to either bring my pain down or if it is a really bad flare, I can usually bring my distress down. I try to remember the beauty all around me and the simplest of things that make me smile or laugh. It might just be something goofy my dog does that makes me laugh or looking at my wee flower garden and how pretty the flowers are.

Thank you for stopping by!

Advertisements

18 Comments (+add yours?)

  1. mybeautfulthings
    Feb 27, 2013 @ 02:10:39

    You have the most beautiful smile! I think your blog will be of interest to others as well as to sufferers. I have learned so much about the lives of others through the blogs I read and will look forward to reading your words too. 🙂

    Reply

  2. thebookybunhead
    Mar 14, 2013 @ 13:42:19

    Thanks for stopping by my blog. The pieces I’ve read here have really touched me – thank you for sharing your words in courage and inspiration. I wish you and your family the very best.

    Reply

  3. Patrick Fisher
    Mar 16, 2013 @ 05:33:33

    Thank you for sharing what you are going through. It is inspirational when someone shares like this and there are so many people out there who care enough to want to read about what you are going through. It is a brave to share these personal moments and will be appreciated by so many.

    Reply

    • shazzagirl70
      Mar 16, 2013 @ 09:47:28

      Wow thanks Patrick i really appreciate the compliment very much, i guess that was the whole reason i started this but really had no idea who would be interested. My little blog is starting to get out there so i am happy. Thanks for stopping by and i hope we see you again. Kind regards Sharon

      Reply

  4. prayingforoneday
    Mar 18, 2013 @ 04:03:09

    I have nominated you for this award.
    http://prayingforoneday.wordpress.com/2013/03/17/very-inspiring-blogger-award-2/
    Please accept this.
    And remember the rules 🙂
    Well done
    Shaun

    Reply

  5. prayingforoneday
    Mar 19, 2013 @ 20:39:25

    Please accept this award
    Tagged In – Blog Nomination

    http://prayingforoneday.wordpress.com/2013/03/19/tagged-in-blog-nomination/

    Thank you
    Shaun

    Reply

  6. cindy knoke
    Mar 24, 2013 @ 15:19:52

    Good for you!!! What an inspiration~

    Reply

  7. prayingforoneday
    Mar 25, 2013 @ 00:32:13

    Please accept this award for “Very Inspiring Blogger Award”
    http://prayingforoneday.wordpress.com/2013/03/24/very-inspiring-blogger-award-4/
    Thanks a lot, and well done!! And remember to follow the rules 🙂
    Shaun

    Reply

  8. prayingforoneday
    Apr 18, 2013 @ 01:39:30

    Please accept this award, THE LIEBSTER AWARD
    http://prayingforoneday.wordpress.com/2013/04/17/the-liebster-award-2/

    Thank you.
    Shaun

    Reply

  9. srakreft
    Apr 19, 2013 @ 15:26:05

    Thanks so much for your comments on my blog! I’m so glad to know that I’ve explained things in a way that might help you. On the other hand, I’m terribly sorry that you have this gremlin to deal with… but your blog seems inspiring and I can’t wait to read more! Happy healing, love.
    Courtney

    Reply

  10. prayingforoneday
    Apr 30, 2013 @ 15:36:54

    Bouquet of three awards
    http://prayingforoneday.wordpress.com/2013/04/30/bouquet-of-three-awards/
    Please accept these 3 awards

    Shaun

    Reply

  11. maccasixty7
    May 04, 2013 @ 04:11:46

    Hi Sharon thanks for reading my blog and commenting, I just read all about you and you are in a part of the world my wife is visiting in the next few weeks thru work, she is taking in Cairns and Brisbane to say she is excitied is an understatement. I hope your pain is as low as possible and please enjoy your weekend X

    Reply

    • shazzagirl70
      May 04, 2013 @ 08:45:23

      Oh really your wife is coming to Australia for work? Wow that’s wonderful. Ha ha yes I can only imagine how excited she must be, I hope she has some time to see the place too and not just work work. Cairns will be really nice too as it will be a little less hot coming on to our winter Down Under. Mind you I haven’t been to Cairns for a very long time um since I was a kid 🙂

      Glad I found your blog and thanks for reading up on me too. I also hope that you have a relatively pain free weekend. Shazz

      Reply

  12. Tetraplegic Bhoy
    Jul 01, 2013 @ 00:06:33

    It’s brave to just start writing and see what comes out at the other end, it can be difficult to face the honest truth at times. Doing this for others will hopefully help you at the same time, that’s what I have found.

    I appreciate the time you took to comment on my site, always grateful for a new friend.

    Steven

    Reply

  13. Rebecca
    May 01, 2014 @ 05:40:13

    Hi Sharon,
    My names Rebecca I also have CRPS and was diagnosed in June 2010. I’m also from Australia and live in NSW on the mid north coast. I would love to have a chat with about your new Dr and the treatments he’s recommending. I have previously had a nerve block done and also had spinal cord stimulator which failed horrendously. I’ve been trying to find drs that will do the ketamine treatments. Look forward to hearing from you. Bec 🙂

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

justpaintandplay

Journey of self discovery by Teresa Low Art

National Pain Report

What You Don't Know Can Hurt You

Kaisercraft Official Blog

Inspiring Craft Ideas

EJ Creative Flair

Alternative Jewellery with Heart & Soul

Lindy's Stamp Gang

Join the Lindy's color revolution!

Living Life Beyond Disability

A World Of Pain....Complex Regional Pain Syndrome

College on Crutches

Rambles of a college girl with RSD/CRPS...welcome to my world.

Gotta Find a Home

Conversations with Street People

Paulette's Blog

A Place of Worship: "Tugging at the Heartstrings of God"

Attack of the CRaPS

Complex Regional Pain Syndrome

CHRONIC

A Day in the Life....

Musings of a Dysautonomiac

Living life one pill organizer compartment at a time.

jenusingwordpress

Because love and affection is always better from strangers.

lady migraine 365

Trying hard to find my way with a headache nearly every day

In Loving Memory Of Jody Ann Bales

All about living life and dying from chronic pain

EDS and Chronic Pain News & Info

Research and articles related to Chronic Pain from Ehlers-Danlos Syndrome & Fibromyalgia

RSDiary

Just another cavalcade of random bitching... ***Updates SUNDAYS

%d bloggers like this: