Turning Right out of Struggle Street


Sometimes it feels as if you hit rock bottom and finally something falls your way.  My last post Struggle Street https://sharonmunday70.wordpress.com/wp-admin/post.php?post=536&action=edit was a point where I was feeling so much worse than my post which was pretty gloomy. The phone call I received in the very final throws of my Struggle Street post was from the Pain Clinic with a Date with a new doctor. This was the turn about.

As each day drew closer to the appointment I was still waiting for them to cancel on me as they had done before. This time no phone call and the day I met Dr Fabulous as he will now be known as, everything changed. I did decide to bring a friend with me, a person that would be able to hear every word, mediate and jump quickly in to bat for me if I needed it.  I wrote pages found myself practicing in the mirror again all this crazy stuff I would do before I would go and see Dr Moleface (as one of my carers came up with…I love it) Within the first sentence of meeting Dr Fab I felt I let out a very long breath I had been holding. I was also a little scared that my second opinion would be tarnished by the desperate need for his opinion and if he knew the back story. After introducing himself he said that he knew why I was here for a second opinion but that he has not read my file as he wanted to give me his unbiased opinion….(that’s when I let the breath go, sit a little more easily in the chair and waited patiently for him to start the interview) My hand performed perfectly hitting every pointer I was told that I didn’t meet by the Budapest Scale of rating if someone has CRPS.  My hand was freezing cold…slightly purple, shiny (with an awful staph weeping rash all over it) and he even managed to look at both of my arms to see that my injured one – my left arm was in fact hairier which I had never been able to notice.  He was very precise and definitely in charge of the interview but that’s fine by me. He asked specific questions and when he asked “Ok so how is the Sharon these days” I told him that my life had completely changed.  At that point he stopped me and said that he wanted to know exactly what each pain felt like…for example the overpowering burning that screams so loudly that you can barely here people over the ruckus and the attention it wants. The left inner point of my wrist feels as if someone had gotten a hammer and smashed it into tiny pieces.  That the outer point of my wrist felt like a thousand wasps had stung all in one place.  The over all dull throbbing dull ache to your bones. That the inner forearm feels as if someone has a knife and is cutting down longways and other pains as well. He was confused by the reason that I continued to wean down off my opioids every few weeks.   I told him that my last specialist was so dead against me taking the opiods that when I got a sniff of feeling a little better I would start to wean down off the drugs quite quickly. He was very professional he did not shake his head or roll his eyes. At the end of the interview he said that I definitely had CRPS and that he would now be in charge of my treatment. Just like that. It has been many many years since I have felt looked after by anyone especially a male and the feeling was relief. That someone else could steer this bloody ship for a while. That I am just so tired of being the leader and medicating myself however I can with no degree in Health. That someone else was going to take the ball and run with it for a while.

First off he wanted me to start back on Lyrica a low dose and keep this going until my first procedure would happened (which is now next week 4th April) He also wanted me to be taking my slow release oxy codone in a shorter cycle to hopefully keep on top of my pain a little better. Then he described what our plan of attack was.

Next Friday I am having a Bier Block IV Guanethidine. I have been trying to find CRPS sufferers around the world to see if anyone has had this procedure done and have not turned up anyone as yet. It will be one treatment fortnightly for 6 weeks. It will involve a drip in my good hand with sedation in it and drip in my bad hand (Oh GOD) that will be infusing Local Anaesthetic and Guanethidine into my tourniquet arm (Tourniquet oh GOD) I have a feeling this will feel very sore when the drugs wear off.

If this is not successful at helping the pain we would try a Stellate Ganglion which is a nerve block that goes in through your neck. He said with this procedure we would know instantly if it has worked or not.

The third option would be Ketamine infusions.

Life in that hour changed. I had hope. I haven’t had hope in all of this time. I have been wasting time looking at a doctor that just holds her head in her hands and re-reads my file sshhing me if I spoke. This time there was no tears but perhaps that was because I was in shock J

It’s been around 5 weeks since I saw this specialist and my head is completely in another space. One dose of Lyrica completely took all of the burning away from my arm. With Lyrica comes other problems so while I wanted to be celebrating with my pain being so much easier to deal with I was hit with an Ear Infection so savage that I had to go to emergency as my eye had swollen over and lots of fluid was coming out of my ear. Now I have lost the use of my right leg but apparently neither of these problems could be drawn back to the Lyrica. My bad knee (6 surgeries between 1986-1997) was not re-injured but it has swollen up to the point that it is unstable for me to walk without a walking cane. It’s been like this for 12 days. Somedays it is less swollen, some days it doesn’t hurt but it is swollen. It’s difficult to say the least as even with a walking cane I don’t feel very stable as I should because I am using it with my only good hand which isn’t the right hand. It also means that I won’t shower myself on Saturdays or Sundays as it is very painful and dangerous getting in and out of this tiny little area now. I can’t walk and carry anything – this is not convenient being home alone all day…eating meals standing in the kitchen when I am alone. Standing hurts and walking hurts just short bouts on the cane is fine.

But all in all – there is hope.



RSD 101

RSD 101.


I have recently stumbled upon Miss RSD and her beautifully written blog.  For some reason I am unable to reblog this particular blog …who know sometimes Word Press just hates me.

This entry RSD 101 I particularly like as I have a lot of trouble trying to explain to one and all this condition (oh by the way RSD and CRPS is the same animal) I found this blog was really well written and made it nice and simple to understand the basics.

Here is a snippet below and please have a look at her writings and her story.


“What does that mean?”

Put simply it is a pain problem. There are two basic types of pain: acute and chronic. Acute pain is temporary, though may be quite fierce. Acute pain, when treated, tends to be gone before the 6 month mark. Chronic is persistent pain, that can last for years beyond the inciting injury or illness.

RSD falls under the umbrella of ‘chronic pain.’

“So what’s wrong exactly?”

The sympathetic nervous system is supposed to carry messages to the brain. Lets say you get a paper cut. These sympathetic nerves say, “That caused pain! RED ALERT!” And passes the message up the chain to the brain, the big boss. The brain transmits to the rest of the body that there is a problem, all available rescue teams roll out.

The problem is that in the case of RSD, the brain is working on flawed information. For whatever reason, the sympathetic nerves are stuck in a loop of “RED ALERT!” The brain, trusting those nerves, responds accordingly by making us aware of the problem. Making us feel the pain. And boy do we feel it.

Struggle Street

struggle street

It’s really tough going at the moment, more disappointments and the feeling of being so terribly disconnected from everyone. I feel so very alone. As new symptoms arise I’m so very scared not wanting to put a lot of effort into thinking about it because I feel I could just “Freak Out” in a way that I can’t contain.

It’s always been about stuffing these feelings down low, with the amount of time I have on my hands all day strangely enough I don’t think about this monster much….I just keep stuffing it down down and then one day the lid comes off and I explode in the most inappropriate way.

I have decided that this year my visits with the Psych will be to try and deal with this illness in a different way – meeting it head on. I am absolutely scared shitless but I have to try something different. At this point of my life 2 and a half years in with CRPS I just cannot imagine ever being “OK” with it. I know other sufferers say the first couple of years were the hardest for them – mentally. No part of this is ok, no part of this do I feel in control, managing the day in day out excruciating pain. I do not feel strong or dealing with it well…I feel as if I am drowning…my head making it to the surface for a gasp of air as I continue to flail my arms for help.

The extreme heat is causing more extreme heat in me. My arm is a bonfire with my face not much different….the pain screams all day…in a lot of cases I can’t hear people talking over it…just screams, you can’t focus or concentrate. Taking too many painkillers and I try regularly to try and come down but at this point I can’t manage without them and this causes of course another problem – along with mobility and severe weight issues and why your insides are just not working how they were designed to.

After leaving it for months, I finally wrote my complaint letter to the hospital about the doctor I have been seeing. My last appointment I was assured of another opinion as I have been seeking for years. The doctor I have been seeing – it’s been a nightmare, I don’t know what I did to get on the wrong side of her but every visit is the same hostility, ignorance, aggression. I finally had been lead to believe that I would be have to see her just one more time and then I could see the professor. During the appointment she told me that she didn’t believe that I had CRPS, maybe once but not now (even though the pain gets worse and so do my symptoms – other doctors in this department believe I have CRPS). She believed there was nothing she could do for me as she believed that I had a little bit of arthritis and needed a psychiatric evaluation. After I left the appointment I did my usual ritual bursting into the toilets downstairs and crying my eyes out. My phone rings about 10 minutes after. It is the doctor. She has spoken to the professor and even though the professor has never laid eyes on me she agrees with the female doctor and I would not be getting a second opinion as they have already discussed this (without me being present)

I just cannot fathom how difficult it is for me to see another doctor. One time I had actually been giving a new appointment time with another doctor then someone that I didn’t know rang me back a week later and said that the appointment would not be going ahead.

This morning I was talking with the patient liason officer about my case. It appeared that she could argue my case but in the end it is the professor that makes the final decision and again it’s not looking good. For once I felt that I articulated myself better and not blubbering about it. I thought it was every patients right for a second opinion. If the doctor I have been seeing has been writing in my file things that are just not true…getting much better…very distressed about getting some treatment…how do I get a fair assessment if no one else has actually looked at my arm? I just received a phone call from the pain clinic booking me an appointment next Wednesday with another doctor. I hold my breath…this has happened before.

“Everyday may not be good but there is something good in every day”


The reality of CRPS


Taken 1 day apart. Of course the top page I am wearing my mask.  My pain is a 7 out of 10 which is a good day for me.  The 2nd photo is taken just after the worst car ride ever. 20 minutes of crying hysterically while my mother drove. Each bump would send the stabbing knife deeper into my arm and letting out full screams at the same time.
This is my reality. It doesn’t get more real than this.

How to Look and Feel Beautiful with an Autoimmune Disease


Thought you might get something out of this article. I know for me it as I have blogged before “It’s all about the Earrings” If I am not wearing my dangly earrings…it is “definitely not a good day”


By Angelica Catalano for YouBeauty.com

“But — you look so good!” your friend says with a confused look, after hearing that you’re sick.

One of the ironies of certain illnesses is that even when you’re feeling cruddy, you can appear just fine. But imagine that you didn’t feel your best most of the time … would you still try to look it?

For those who suffer from autoimmune diseases, looking good means masking a civil war going on inside: Your immune system attacks healthy cells in your body as if they were enemies. Over time, tissues become inflamed and cause pain in the war zone, which differs based on the affliction. In the case of Rheumatoid Arthritis (RA) the battle zone is your joints; your intestines with Crohn’s Disease and for Multiple Scleroris, the brain and spinal cord.

There are more than 80 types of autoimmune diseases, some of which may have genetic components. The environment can also make things worse by prolonging or exacerbating symptoms. For example, stress and infections can kick up symptoms by activating genes that trigger an autoimmune response.

While some people experience chronic, debilitating symptoms, others have the occasional flareup. It’s unpredictable, and it takes effort to maintain a strong sense of personal style and inner beauty.

“You could feel fabulous today and horrible tomorrow,” YouBeauty reader Jane says about RA. When a bad day strikes, she’ll stay in bed. But most of the time, she puts her best face forward, even if she’s swollen and in pain. “I make a point of looking my the best,” she says. “I always feel better when I put on my red lipstick.”

Integrative Health Expert Jim Nicolai, M.D. agrees — you could lift your spirits with something as small as finding a really good set of cosmetics. “If there’s something you feel really good about and it makes you feel good, I promote it as a health strategy,” Dr. Nicolai says about working with patients at the Dr. Andrew Weil Integrative Wellness Program at the Miraval Spa in Tuscon, Arizona.

Jane has been cultivating her style for years, looking polished even during the early hours of preschool drop-off. “It’s just a trick. I put sunglasses on, a pair of gold hoops and a long trenchcoat on top of my pajamas,” Jane would tell mothers who asked how she always looked so put together.

She’s stayed true to her style through her RA diagnosis, sometimes looking so good that people don’t understand she isn’t feeling well. She attributes it to her signature scarlet lips, which keep her looking like herself, even when steroids cause face bloating and other side effects.

But when you look so good that no one knows you’re not feeling it, does it help or hurt?

“There are times when someone has a chronic illness, that they relish in normal interaction with other people. If you’re not showing lots of visible signs, you have more of a chance to feel normal,” says YouBeauty Psychology Advisor Art Markman, Ph.D., a professor of psychology at The University of Texas.

This appears to be a boon for our wellbeing, though it can backfire on days where you’re with people who can’t see the disconnect between how you feel and how you look.

YouBeauty reader Maria has trouble interacting with others during a Multiple Sclerosis flare-up. “Sometimes I need support and if people think you look good, then they are not understanding. If you had a neck brace on people would know something was wrong,” Maria says. “On the other hand I don’t want sympathy either, so it’s complicated.”

Dr. Markman suggests that when you really aren’t feeling well “You have to learn to say, ‘I’m having a tough day,’ if you’re not showing it on the outside,” he says.

This is exactly what Chef Seamus Mullen does when he experiences RA symptoms. “I think it’s most important to speak openly about it.” He’s straightforward on a bad day, telling his restaurant staff at Tertulia what he can and cannot do. That way, when he’s stubbornly trying to lug something into the kitchen with achy hands, someone will lend a hand.

Even on the ugly days, there are ways to try syncing your body and mind, so you start feeling as good as you look.

Enhancing Mindfulness: Conditions can flare up in response to emotional ups and downs. One component of an integrative medicine perspective is psychoneuroimmunology — the study of the link between psychology, the nervous system and immunity, based on the idea that our bodies respond to the way we process information mentally and emotionally.

Both Jane and Maria use guided meditations, which help them reframe stressful situations and avoid exacerbating their symptoms. Maria puts aside 20 minutes to meditate with a Healing Meditation by Kelly Howell. “It gives an overall focus on the strengths of your body and how you can incorporate those strengths into feeling better,” she says. Other times, if she is experiencing a significant amount of stress, she visits a placid place to reflect.

“I go to the convent; it’s really quiet. You hear the cloister nuns chant. It’s an environment that’s really conducive to going within, and being grateful for your blessings. I feel lighter, stronger and supported. Everyone there is focusing on mindfulness,” Maria says.

Jane wishes she were more spiritual, but admits that she’s not very. She finds other ways that bolster her emotional wellbeing. Jane’s doctor recommends that she continues her hobbies as usual. “I have a homework assignment to go to my studio and paint,” Jane says of her last doctor’s appointment.  In the quiet space of her studio, she produces abstract portraits of woman in vivid colors, so alive, they appear to jump off the canvas. Painting is one of many hobbies that people get immersed in, that can greatly benefit physical and emotional health. Called “flow,” regularly getting lost in such an activity can enhance concentration, self-esteem and self-reported health.

Finding a Personal Exercise Routine: “Keep regular exercise, not just because it keeps weight down, but it makes you feel better,” Dr. Nicolai says. He adds that mild to moderate exercise is best for boosting your mood without overtaxing your body.

With arthritis or pain-related problems he recommends activities like water aerobics or Zumba. “After doing that you’re going to have a better physical response than if you sat for three to four hours at a time,” he says. “Changing the way we move can change the way we feel.”

Jane has done water aerobics. “They have a dedicated class for people with arthritis and they keep the pool at 86 degrees, so it is very nice. I did find it beneficial,” Jane says. “I find, however, if I am in really bad shape, I don’t want to go and usually don’t. Look at it this way: if you had the flu, would you go out and do anything? That’s kind of how it is,” she adds.

Feeling well enough to muster up the energy to exercise class is often the biggest hurdle.

Maria splurges on private Pilates lessons because she feels it forces her to make exercise part of her Multiple Sclerosis treatment. “It’s a private setting so I can’t blow it off, I have to commit to it,” she says. Setting small goals for yourself can give you the push you need, even on the bad days.

Not Giving “It” Power: While it’s beneficial  to talk about what’s on your mind, talking too much about the negative aspects of your disease may drag you down. “I don’t want people to be in support groups that focus on symptoms and nastiness,” Dr. Nicolai says. He encourages patients to rise above a hopeless, negative attitude, so they can still feel beautiful.

If your diagnosis isn’t definitive, Dr. Nicolai even suggests not naming your problem. “A lot of people’s autoimmune symptoms are nebulous or grey. The lab tests say you have one marker for lupus, and another test says Sjogren’s syndrome.” In this case, he suggests focusing more on treatment than naming the problem. Let’s keep it gray, see how it’s manifesting itself.

Being Beautiful, Inside and Out

“Rheumatoid Arthritis is my reality, I can’t deny it and run away from it. I have to acknowledge it,” Chef Seamus Mullens says. This mentality not only helps him, but will help many more people — his anti-inflammatory diet cookbook, “Seamus Mullen’s Hero Food,”  is set to come out this spring.

Hone in on the things you know will boost your mood and beauty. Surround yourself with people who lift your spirits and understand your situation.

Even on those days when you feel your body is complete chaos, you can maintain your personal style and inner calm.


November is CRPS/RSD Awareness Month


November is CRPS/RSD awareness month. Personally I guess I have never had to (thank goodness) pause to think what an awareness month has really meant for me in the past. I have not really been affected too much in the way of friends and families to fight for awareness for. A friend of mine passed from cancer and I have held a few “Biggest Morning Teas” in her honour and have always tossed coins that way. I always always scrounge for spare change for the Salvos, or any other charity if someone knocks. I have always in some way dedicated my time to helping at Food banks or knitting for the needy and I can’t really remember a time when I was an adult that I wasn’t volunteering for something or other.

Here in Australia there is no charity that collects for research for CRPS/RSD. I tell people that it is a somewhat rare disease but when you read facts such as:

RSD/CRPS is NOT a rare disorder, and may affect millions of people. It is hard to pinpoint the number of people who have RSD/CRPS, though some estimates put the number of people afflicted with this syndrome at 6-10 million and other estimates claim between 5% and 10% of the population.
That makes the RSD/CRPS population of the United States greater than that of the Combined United States Military, 2,221,502.


All these people and still you can feel so desperately alone. In Brisbane I feel personally that the medical profession in the public sector seems to be so backward. All the jokes that other states tell about Queensland being backward, well the lack of knowledge by one particular “so called” professional that treats more CRPS patients than any of the other doctors at the Royal Brisbane really should just read just 1 article on this disease. How can we get ANY treatment as a public patient in Brisbane? The answer is seeming to be – you don’t. After 2 years of waiting and begging for treatment I am back to square 1, trying to find a new clinic to take me on about an hour from home. Luckily though it comes with good references (Thank you Col) so it is again a waiting game.

At present I am not up for waiting games. It is Day 9 of a horrible flare that causes me to not be able to shower myself or change my clothes, basic day to day everyday kind of things. On Day 9 it also means that I have become completely tolerant to anything that may have just taken the edge away from a 19 out of 10 pain…all day long….so I now greet each day with sleep and meditation…all day long. My sense of humour fast evading me. At this point I ponder….a sympathetic nerve block….a dose of ketamine…dreams that once were about trips to America and other places. I wonder how long I will have to sit here stuck in this never ending circle before we can try something new.

If there are so many people with this disease why aren’t their more trained specialists in pain relief as there is no cure presently for CRPS. How does 1 raise awareness…is it the same as the riddle “How do you eat an elephant…one bite at a time.” How do you raise awareness for CRPS/RSD…one person at a time. If there are so many people in this excruciating pain why are they letting us suffer?  Below is the McGill Pain Index showing a scale with this disease being the highest chronic pain you can feel (it is also represented as Causalgia on the scale)
McGill Pain Index

This disease ruins lives in so many ways. I couldn’t begin to convey how things have changed for Master Shazz and me. Master Shazz became my carer at 13. This disease has you clinging to any tiny weeny happiness that once you probably didn’t even see. This disease has me clinging to the fact that there are still so many people in this world worse off than me.

So on my “wee little blog” we will eat the elephant 1 reader at a time and remember the mantra on Day 9 “This too shall pass”

Previous Older Entries

Freemason to Mansion

Renovating a 91 year old 20,000 square foot former Freemason Temple into a home


Journey of self discovery by Teresa Low Art

National Pain Report

What You Don't Know Can Hurt You

Kaisercraft Official Blog

Create something beautiful

EJ Creative Flair

Alternative Jewellery with Heart & Soul

Lindy's Gang

Join the Lindy's color revolution!

Living Life Beyond Disability

A World Of Pain....Complex Regional Pain Syndrome

College on Crutches

Rambles of a college girl with RSD/CRPS...welcome to my world.

Gotta Find a Home

Conversations with Street People

Paulette's Blog

A Place of Worship: "Tugging at the Heartstrings of God"

Attack of the CRaPS

Complex Regional Pain Syndrome


A Day in the Life....

Dogs, mental illness, and the quest for skinny

Blogging is a form of therapy too.

lady migraine 365

no brain no headache

In Loving Memory Of Jody Ann Bales

All about living life and dying from chronic pain

EDS and Chronic Pain News & Info

Curated News and Information on Chronic Pain and Ehlers-Danlos Syndrome